Save Babies Through Screening
Savebabies.org supports comprehensive newborn screening to prevent disabilities and death from detectable disorders.
The mission of the Save Babies Through Screening Foundation is to improve the lives of children and their families, by working to prevent disabilities and death resulting from disorders detectable through newborn screening tests. The Foundation’s goal is to see that every baby born in the United States is screened successfully, effectively, and comprehensively.
Save Babies Through Screening Foundation educates parents, pediatric healthcare providers, and policy makers about available comprehensive newborn screening, the importance of obtaining positive or other test results requiring follow-up actions within 5 days of birth, and the importance of prompt confirmatory testing and treatment/management when needed.
Save Babies Through Screening Foundation promotes its mission by working to:
- Improve awareness of disorders detectable through newborn screening.
- Facilitate communication among screening programs, support groups, and families
- Assist parents in understanding their state’s newborn screening requirements.
- Support implementation of newborn screening guidelines and regulations.
- Encourage prompt clinical identification of affected newborns.
- Enhance resources for newborn screening including testing, parent and professional education, short-term follow-up care programs, long-term follow-up programs for treatment/management and related services, and related research and development.
- Promote national consistency in policies and service delivery among state screening programs.
